Parker Family Stephen was diagnosed when he was 3 along with his sister Ashley Foster after his brother Billy Philpott was diagnosed. Stephen was adopted into the Parker Family and Ashley into the Foster family after Billy became a Batten angel. Ashley also is now a Batten Angel. Stephen lives with his mom Dorothy Parker, and brothers Justin, Brandon, johnny and Stormy. THey live in Kissimmee FL.

Spaide Family Erica was diagnosed when she was 6. She lives in Miami with her mom Kim and sister Gina. Her dad Chuck doesn't live with her but lives in the area. She attends school everyday and is very social she loves horses. Kim does a lot of fundraising for the chapter and hosts the batten softball game and bbq. Thanks Kim for all your hard work.

Our Familes

The other families not pictured are The Riddles, St. Augustine, The Rines North Port, the Cartledges in Ocala, the Basones in Hollywood, the Barrosos, in Miami, the Grizzles in Brandon, the Skippons in Lakeland, the Osborns in Titusville, The Harrells in Grand Ridge,The Williams in Crawfordville, and the Demseys in Ft. Lauderdale, Also the Weiss from West Virgina and the Rosches from New York.

Milani Family Joey & Billy were diagnosed in 1994 with the late infantile form of Batten Disease. They live in maryland with their mom cindy and their dad Bill. Thier grandparents John Sr. and Nancy Milani and their uncle John , aunt Debbi and cousins Andy and Erin are members of the Florida Chapter. John Sr. and Nancy live in Florida and Uncle , AAunt and cousins live in Georgia.

Parker Bowen Families Lauren Parker was diagnosed when she was 10 years old. She lives in Savannah Ga. with her mom Terri Bowen, Sister Brittany Parker, brother Joshua Bowen. Her Stepdad Keith Bowen lives in Brunswick Ga and visits with her often. She also has a stepsister Mallory Bowen that lives in Brunswick near her dad.