Welcome to the Teens With Crohn's Disease Website


Crohn's Disease: An inflammation of the digestive tract commonly found in the small and/or large bowel that is very painful and very, very, annoying.

Experiences / Recipes / Who Runs All This? / Links

Welcome! I was first diagnosed with Crohn's Disease nearly ten years ago and, being a teenager at the time, I found it difficult to talk to others about the disease that did not have it. I created this site as a place to share stories and information - for teens, by teens - with Crohn's Disease, Colitis, or IBS. Apparently I've made a big impact here. I'm glad to do what I can to make a difference.

On this page, I will post experiences we teens have had with the disease. Any advice you may wish to pass on to others is also welcome. Since most all of us follow special diets, there is a recipe section. I have tried many of the recipes listed here, and several have become my favorites. Try them and let me know what you think. Please keep in mind that all of our diets are different, so what works for someone else may not work for you.

You might be saying to yourself at this point, "But I'm not a teenager!  What can TWC do for me?"  In the past seven years I've received e-mail from Crohn's patients of all ages who have had plenty of advice to offer and stories to share.  No matter what your age group, be it preteen, teen, or used-to-be-teen, there is all sorts of useful information here that easily applies to all ages.

Send recipes or experiences to me and I will post them here. I welcome any feedback about this page.  I have received mail from people in Denmark, Iceland, England, Holland, Belgium, Scotland, Thailand, Brazil, the Dominican Republic, Turkey, Indonesia, USA, Colombia, Brazil, Finland, Czech Republic, South Korea, France, India, Pakistan, Sweden, Slovakia, Israel, Australia, Germany, Switzerland, Slovenia, Zimbabwe, Argentina, and Canada. It's great to know that we are all helping each other through the hard times and celebrating during the good times. As usual, I will try to answer every mail that I receive. See below to see what's new, and keep those e-mails coming!


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What's New This Week?

Things have been changing in my life lately and I'm sorry to say that I don't have much free time these days to spend working on TWC.  This is why I'm asking you, until further notice, to no longer send in material for posting on the website.  By all means please continue e-mailing me with questions that are not answered somewhere on this website and although it can take me a while to answer, I will reply to everyone.  If you need something answered urgently, there's plenty of kind souls engaged in helpful conversation at the TWC Message Board.


Experiences, Stories, and Advice

Have a question about Crohn's? A story to share? Need a shoulder to cry on? Don't know what to eat safely? Look through these sections to see what this global support network of teenage Crohn's patients has to offer.

The Feedback and Experiences Gateway    (Come read the latest stories)
Tube Time   (The place for feeding tube information)
Surgery Central
  (Because you demanded it! Share your experiences with Crohn's-related surgeries)
There's No Place Like Crohn's For The Holidays    (Share your holiday tales here)
Steer Clear   (Discuss activities that can irritate CD)
Diagnosis Day    (Add your Diagnosis Day to the list)
Positive Actions    (Ever glad that you had Crohn's? Share that time here)
Crohn's and College    (Advice on beating university-induced stress)
Have You Been Helped?   (Has TWC helped you make a new friend?)
The Great October Mystery   (What is it about the tenth month of the year?)
Lactose-Free Commercial Foods (A list of common lactose-free foods)
Quick Tips   (Suggestions for better living)
A Quick Warning About MSG (Read this and stay informed)
How to Substitute With Honey (Now, you too can reduce your sugar intake)
Food Substitutions (Use this chart to convert forbidden ingredients to things that you can digest)
Tips for Traveling    (Share your thoughts on traveling here)
How Do You Tell Your Friends?    (Ideas for explaining Crohn's, Colitis, or IBS)
Medications    (Read the medicine list and add to it)
Ensure (How much do you know about this wonder drink?)
Vitamin Power (Looking for some vitamins? Try here)
Dining Out   (How to handle ordering at restaurants and at a friend's house)
Forbidden Foods (See the list of dangerous foods)
With a Little Help from My Friends   (Have your friends ever helped you out when you're sick?)
Facing the Facts (Learn about ways to stop another downside of Crohn's)
Sibling Support   (Siblings of CD patients can speak here)
Don't Worry, Be Happy   (Contribute to the list of things to do when a flare up occurs)
Mighty Mentors  (Help someone out or ask for help)
Dealing With Doctors  (Share your thoughts about doctors)
The Magazine Rack    (Read essays, articles, and speeches about Crohn's. Submit yours, too!)
The Lighter Side    (Explore the lighter side of Crohn's Disease)
IBD TV   (TV characters have stomach problems too)
University Disability Office List
   (Get help where you need it; help add to the list as well!)

Back to the top of "Feedback and Experiences"


Recipes

Many Crohn's patients are on limited diets. But what is there to eat? Try these dishes.

Breakfasts

Desserts

Lactose-Free Hot Cocoa  (Especially good on the cold days) Mia's Banana Shake  (Sounds like a good treat)
Caitlin's Instant Breakfast Ice Cream (Fast and easy sweet snack) Erin's B-4 Scope Orange Smoothie (Good before the big test)
Banana Bread (Moist and soft) Robyn's Grape Prednisone (Use only as directed)
Banana Muffins (Good for a quick snack) Robyn's Boost Shake (Good pick-me-up)
Lactose-Free Hash Browns (A part of this nutritious breakfast) Lactose-Free Gingersnap Cookies (These will be eaten quickly)
Lactose-Free French Toast (Makes a good breakfast) Ryan's Lactose-Free Cheesecake (Sounds good)
Pumpkin Bread (Not for sandwiches, if that's what your thinking) Carob Brownies (Just the thing for that craving)
Lactose-Free and Oil-Free Pancakes (Easy to digest) Ensure Ice Cream (Let them eat ice cream!)
Weight Gain Drink (Trying to gain weight? Danya suggests this...)

Snacks and Side Dishes

Carob Cake with Carob Icing (My personal favorite)
Potato Flour Muffins (A biscuity-muffin-roll snack) Banana Cake with Frosting (This one is sweet and gooey)
Rice Noodles (Cook well, eat lots) Lactose-Free Lemon Meringue Pie (Cool and refreshing)
Brittany's Crispy Onion Rings (This one has a lot of near forbidden stuff) Lactose-Free Carob Donuts (These are great)
Grease-Free French Fries (Not greasy like fast-food fries) Lactose-Free Apple Pie (Traditional pie)
Potato Cakes (Give 'em a try) Lactose-Free Sugar Cookies (Plain yet perfect)
Melanie's Fruit Roll-Ups (Made from scratch) Lactose-Free Apple Cobbler (Makes a great dessert)
Gnocchis (Don't let the name scare you) Lactose-Free Cinnamon Rolls (Time consuming, but they're worth it)
Rachel's Fruit 'n Cheese Snack (Contains cottage cheese and fruit) Chewy Carob Brownies (These are hard to put away)
Ritz Nachos (Simple concept, yet delicious) Isocal Eggnog (Calls for rum flavoring)
Soy Cheese and Macaroni (Very filling) Lactose-Free Pumpkin Cookies (Great for a snack)
Fat Free Potato Chips (Good for a quick snack) Carob Frosting (Just the thing for that dry cake)
Quick Lactose Free Mashed Potatoes (Delicious and quick!) Peanut Butter Rice Krispy Treats (Thick and gooey)
Lactose-Free Swedish Brownies (Not really from Sweden)

Dinners

Lactose-Free Peanut Butter Cookies (Very peanuty)
Meatloaf  (I'm not a big meatloaf fan, but even I like this!) Lactose-Free Pumpkin Pie (Tastes great all year long)
Lactose-Free Hot Pockets  (Just like the freezer section used to make) Carob Ensure Delight (Good for those of us on liquid diets)
BBQ Cups (The latest from the Webmaster's kitchen)
Rachel's Chicken Parmesan (Rachel has shared this dish with us)
Jill's Chicken Cacciatore (Seems a little strong, so be careful)
Mashed Potato and Meat Casserole (Makes a nice meal)
Crispy Coated Chicken (Very filling)
Ensure Quiche (Sounds unique)
White Pizza (Good alternative to tomato sauce)
Lasagna Roll-Ups (Try it, you'll like it)
Creamy Tomato Sauce and Pasta (Easy to make)
Lactose-Free Pizza   (A personal favorite of mine)

Back to the Top of "Recipes"


Who Runs All This?

Who created TWC? And why? Learn about Matt the Webmaster and read some of his thoughts here.

"My Life With Crohn's Disease"   (The story of how I was diagnosed and beyond)
Saturday Night Online interview
   (Canadian website interviews Matt the Webmaster)
WebMD article (Medical website quotes Matt the Webmaster in an article about smoking)
TWC Webmaster Featured in Chronic Illness Book (Excellent book now available)
Awards   (See what TWC has won)
TWC Timeline  (See where TWC has been during past years)


Links

Looking for something more? Browse through this list of extensive links in the IBD world.

Teen Crohn's and Colitis of America  (Part of a Girl Scout Gold Award project)
medGrasp
  (An index of information)
Been There, Done That
   (Another personal site devoted to Crohn's)
Life And Times
    (A new informational website)
Kim's Crohn's Disease Help
   (A compilation of Kim's knowledge and discoveries)
Intestine City   (Back from the dead)
The IBD Club (Information for UK Crohn's patients)
Crohn's 4 Kids  (A Crohn's site for the younger crowd)
The Dance
   (A look back over four decades of living with Crohn's)
Carers of Crohn's    (Another new site for Crohn's patients)
crohnscolitis
    (The Crohn's/Colitis Chat Room for AOL members only)
The IBD Patient Community   (A new portal site for the IBD world)  
Starbright  (Dedicated to the creation of projects that empower seriously ill children and teens)
Andrew's Crohn's Page
(Still 'Under Construction' but on it's way) 
PARA: Scientific Facts About Mycobacterium Paratuberculosis and Crohn's Disease
(Info on the bacteria that is now believed to be a part of Crohn's)
Crohn's Disease: An Approach to Remission (One family's attempts to reach remission)
Canadian Crohn's Message Board (New resource for those in the north)
Australia's YOU (New ostomy site from down under)
The UK Lactose Intolerance Page (Another great resource for no milk whatsoever)
David's Crohn's and Colitis Webpage (Personal experiences and more)
The Crohn's/Colitis/Ostomy Meeting Place (Jeff's contribution to the CD community)
Gut Feelings (Check out Rick A. the DJ's newsletter)
Kristin's Lactose Intolerance Website (was "The 100% Lactose-Free Page")
Crohn's/Colitis Page (A valuable source of information)
Healingwell.com's Crohn's Page (IBD web portal)
Crohn's-Colitis Newsgroup (Your ISP must have access to this to view)
CCFA of America (The Crohn's/Colitis Foundation Homepage)
The IBD Humor Page (Jokes and anecdotes about Crohn's, Colitis, and IBD are here)
Crohn's/Colitis Foundation of Canada (Now in Canada!)
Heather's Crohn's Site (Another site to see)
iritis.com
    (All about an eye condition that some Crohn's patients encounter)

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This page was last updated on July 5, 2004.

All advice and recipes on TWC are only opinions. Neither Teens With Crohn's or it's Webmaster will be held responsible if you suffer any problems after using advice from these pages or as a result of e-mailing any of the addresses on this website.

In addition, all pages and files located on the http://pages.prodigy.com/teencron/ and http://pages.prodigy.net/mattgreen/ servers are copyright 1996 - 2004 by the Webmaster of TWC. Any outside linking to recipes, advice, etc. is prohibited without permission.