From: KellieThanks to everyone who has been sending me their experiences and comments about the website. It's really nice to know that lots of people are getting some good use from it. Here's a sample of the mail I've received. Some letters have been edited for space. If you want your e-mail address displayed by your comments, be sure to let me know. Otherwise, I won't put it up. After all, we all value our privacy! Several people have a nasty habit of not fully typing their e-mail address, especially on the forms. "back@last" is not a complete address. I must also have the "@wherever. com" to send you a reply. So please, send all of the information for an accurate response. One more thing: I get so much mail everyday that sometimes I accidentally overlook a letter or two. If you don't get a response in a few days or so, e-mail me again and remind me, please! Thanks for your help, and your mail!
From: KellieI just wanted to say thanks so much for your site! ever since I was diagnosed last year I was looking for someone I could talk to about this, and it feels so good to know that teens like me have gone through the same stuff...anyway, thanks so much, I feel so much better now!
From: KathI’m 19 and currently studying Journalism at the University of Melbourne, Australia. I was diagnosed with Crohn’s in March 2000, at the start of my last year of High School. I found out I had CD after spending six months with a perianal abscess that wouldn’t heal. I had emergency surgery to remove the abscess in October 1999, when I was 16, and I was told to bathe in salt water twice a day until the wound healed. After six months and two rounds of exploratory surgery trying to decide why it wouldn’t heal, I was referred to a Colorectal surgeon who fixed the wound and said it was probably a sign of Crohn’s. My first flare happened just before I moved to away to College in Melbourne in February 2001. My surgeon just said I should be careful, and I didn’t have any more problems until April 2002, when I had a huge flare which I’m still dealing with. Because my whole family is at home in Tasmania and I’m all alone here in Melbourne it was really hard to deal with. Luckily I have a great Gastroenterologist. She put me on Mesalazine and Prednisolone to start with, which helped for a while, then I went on Cipro which totally stuffed me around, so I was put back on the Pred. Now I’m on Pred, Immuran and Mesalazine trying to keep the flare under control, but not much appears to be helping. I take Panadeine Forte all the time for pain. The worst side effect so far is the depression. It’s also hard to keep up with my classes, and with my friends - a mad bunch who like going out all the time. Most of the time I feel like there’s no one who understands, or there’s no one I can talk to. I’d love to chat with other Crohnies, so please drop me a line at kathuziallo@hotmail.com.
From: RachelI just wanted to tell you how helpful your site has been. Two of my cousins have been diagnosed with crohn's disease for several years now. I didn't think much of it until last month when my little 8 year old cousin almost starved to death because of it. I wanted to know what she was going through and your site really helped. The first hand accounts really helped me to understand the pain she's been going through.
From: SofiI'm a 16 year old girl from Argentina. I was looking for web pages that talk about Crohn's disease (I was diagnosed last year), and I could only find 2 in Spanish that had interesting info. I looked in English and found yours, it was perfect! I mean, teens with Crohn's disease. I don't know anyone personally that has it, so I'd like you to answer my mail and at least have an online friend. I'd also like to tell you, I was checking your web page and you didn't have anyone from my country sending u mails. Now u have to put Argentina there (lol). Well, thanks for making that web page, I like finding out new things about Crohn's disease Oh! sorry for my spelling, I mean I only speak English at school Thanks for your time!!
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