MYASTHENIA GRAVIS LINKS

Myasthenia gravis is an autoimmune disease affecting the neuromuscular junction and producing weakness of voluntary muscles. It is a chronic disease deriving its name from Latin and Greek words meaning "grave muscle weakness." This myasthenia gravis homepage contains a collection of LINKS to excellent sources of information needed by patients and families of patients to help them understand their disease, treatments and the side effects of medications. These sources are by no means the only (or even best) sources and patients should seek out others as well. NOTE: Decisions on individual treatments should always be determined by a physician. The information obtained here is for education only.

Welcome to newly diagnosed patients or older ones who have just found this hompage. Every attempt has been made to find information on the internet that will answer your many questions and hopefully ease your fears. There are many patients who have preceeded you and can help as well. Please search the links below and when you are comfortable join our discussion areas through Patient-to-Patient Connections. If you can't find the answers to questions through the links on this homepage, chances are other patients (or even physicians) can help on-line. Daily living with myasthenia gravis is also featured on the Life With Myasthenia Homepage maintained by Donna and Amy Whittaker. Stan Way

This page updated June 15, 2008.

INDEX TO MYASTHENIA GRAVIS LINKS

• Organizations - Myasthenia Gravis organizations around the world including the Myasthenia Gravis Foundation of America.
• Newsletters available from Myasthenia Gravis organizations. List yours now!
• Early History of Myasthenia Gravis - compiled (needs additional information)
• New booklet for the physician summarizing the latest in diagnostics and treatment (or patients wanting detailed information).  Note that a French version is also available.
• Diagnosis - websites focused on diagnosis (including some sites for physicians)
• Thymectomy - webpages describing methods, effectiveness and thymoma.
• New research effots - links to current ongoing research efforts toward a cure or better treatments.
• Causes and Treatments - General Overview, Plasmapheresis, IVIG, Drugs are some of the topics linked in this section.
• Mestinon® cost issues and comparisons.
• Special Issues - Myasthenic Crisis, Ocular MG, Childhood MG, Pregnancy, Menstruation, Sex, Nutrition, Safety, Drugs which aggravate MG and Emergency Management are some of the topics covered in this section.
• Medical Information - Medical information on every aspect of MG.
• Research and Researchers - Information on research and the researchers around the world who are engaged in myasthenia gravis research.
• Famous myasthenics - Information on myasthenics, past and present.
• Individual Stories - stories describing individual patients and how they have dealt with MG.
• Personal Webpages - webpages provided by myasthenics which include a focus on myasthenia.
• Congenital Myasthenia Syndrome - on-line websites with information on congenital (non-autoimmune) myasthenia syndrome.
• mgmail was a large email listserv for myasthenics around the world.   Follow the link for directions to the new location.
• Patient-to-Patient Connections - how to get connected to other patients.
• Life With Myasthenia - dealing with daily issues.
• Non-English Myasthenia Gravis Information - websites with non-english MG information.
• Chat Rooms - Four Chat Rooms for On-Line interactions with others.

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