| BEST OF MYASTHENIA GRAVIS LINKS | Distribute Freely |
| Revised 13 May 1997 | |
| Description | Web Address |
| Basic Web Information | Websites and Patient to Patient Internet Connections |
| This page of websites for myasthenia gravis | http://pages.prodigy.net/stanley.way/myasthenia/mgtable.htm |
| Myasthenia Gravis Links | http://pages.prodigy.net/stanley.way/myasthenia/ |
| Life With Myasthenia - dealing with daily issues | TBD |
| Patient to Patient Connections - The services below are described and accessible through this page. | http://pages.prodigy.net/stanley.way/myasthenia/patient.htm |
| To be added to mgmail list server, send an email to majordomo@listserv.prodigy.com | Put 'subscribe mgmail' in text |
| To send messages to the mgmail mailing list | mgmail@listserv.prodigy.com |
| Myasthenia Gravis Organizations | MG organizations including those that encompass MG |
| MG Links Organization page with all of the organizations listed below plus others. | http://pages.prodigy.net/stanley.way/myasthenia/organiza.htm |
| MG Foundation of America | http://www.myasthenia.org |
| Myasthenia Gravis Chapters in the United States | http://www.myasthenia.org/chapters/ |
| MG Association of Colorado Homepage | http:/www.4-mga.org |
| MG Association of Western Penna.Homepage | http://trfn.clpgh.org/orgs/mga/ |
| United Kingdom MG Association | http://www.crabby.demon.co.uk/mga/ |
| MGA Association Branches in the United Kingdom | http://www.crabby.demon.co.uk/mga/branches/contents.htm |
| Myasthenia Gravis Association of Ireland | http://ireland.iol.ie/imd/g14x.htm#MYASTHENIA |
| MG Assocation Belgium (English page under construction) | http://www.dma.be/p/bewoner/MGLiga/index.htm |
| Muscular Dystrophy Association of Australia (A VERY good source of information.) | http://www.mda.org.au/mdamg.html |
| AIM - IM; Associazioni italiana e internazionale per la lotta contro la Miastenia, an organization in Italy. | http://www.vol.it/IT/IT/ASSOC/AIMIMG/ |
| Dutch Neuromuscular Diseases Association - English information for VSN | http://www.vsn.nl/engels.htm |
| Welkom op de HomePage van de Vereniging Spierziekten Nederland - an organization for neuromusclar diseases. | http://www.vsn.nl/ |
| Finnish Muscular (Dystrophy) Disease Association treats all neuromuscular diseases - has patient support groups. | http://www.ttl.fi/lihastautiliitto/e-index.html |
| Diagnosis | Specific diagnostic methods. |
| How is Myasthenia Gravis Diagnosed | http:/www.4-mga.org/pubs/pguide/ howdiag.htm |
| Types of Myasthenia Gravis That Involve an Autoimmune Response | http://www.macalester.edu/~psych/whathap/UBNRP/Gravis/ autoimmune_types.html |
| Diagnosis from the Merck Manual | http://www.merck.com/!!sGLGz1nlhsGLIc0PMc/pubs/mmanual/ html/niikddfd.htm |
| Tensilon Test from AHCN (Housecall) Health Information | http://www.housecall.com/databases/ami/convert/003930.html |
| Diagnosis of myasthenia gravis using repetitive stimulation and Single Fibre EMG | http://www.neurofys.uu.se/methods/diseases/mg.html |
| Assesment including differential diagnosis, therapy, pathophysiology. University of Texas, 1994, Alan S. Tonnesen, M.D. | http://www-anes.uth.tmc.edu/cc/nv/nvmyas.html |
| Diagnostic procedures are summarized by this Washington University-St. Louis page. | http://www.neuro.wustl.edu/neuromuscular/mtime/mgdx.html |
| Explanation of the use of electro diagnosis by The American Association of Electrodiagnostic Medicine | http://www.pitt.edu/~nab4/what.html |
| Diagnostic testing utilizing the AChR antibody test is detailed by the University of British Columbia, Canada. | http://www.interchg.ubc.ca/neuroimm/mg.html |
| Stategies in electrodiagnostic medicine from an interesting Finnish writer | http://www.tut.fi/~korpinen/emgstra.htm |
| Myasthenia Gravis (MG) is een neuromusculaire aandoening. (Diagnosis in Dutch) provided by VSN. | http://www.vsn.nl/dia2214.htm |
| General Overview | Websites that provide broad overviews of myasthenia issues. |
| A Practical Guide to MG by John C. Keesey, M.D. and Rena Sonshine - English version | http://www.med.unc.edu/mgfa/mgf-prac |
| Disorders of the Neuromuscular Junction - Myasthenia Gravis, a general overview of diagnosis, treatment and prognosis. | http://www.bcm.tmc.edu/neurol/research/nmus/nmus3b.html#mg |
| Description, Disorder and Autoimmune Involvement - from Macalester College. | http://www.macalester.edu/~psych/whathap/UBNRP/Gravis/ real_mg_directory.html |
| Physical Manifestations of Myasthenia Gravis - from Macalester College. | http://www.macalester.edu/~psych/whathap/UBNRP/Gravis/ physical_manifest.html |
| Management of MG: Introduction - from Macalester College. | http://www.macalester.edu/~psych/whathap/UBNRP/Gravis/ management_intro.html |
| Patient Question and Answer on Mestinon from Dr. Henry Kaminski (new question each month) | http://mediswww.meds.cwru.edu/dept/neurology/myasthenia/ mg896.html |
| How Does Research in MG Relate to Treatment? - from the Colorado MGA | http:/www.4-mga.org/nov94/research.htm |
| Facts About Myasthenia Gravis - Causes, Treatments and Special issues (including pregnancy) - English version | http://www.med.unc.edu/mgfa/mgf-fact.htm |
| How is Myasthenia Treated - an excellent article from the Colorado MGFA. | http:/www.4-mga.org/pubs/pguide/treated.htm |
| Current Therapies: Making Informed Decisions - an excellent, patient oriented, overview of treatments. | http:/www.4-mga.org/pubs/survival/therapy.htm |
| Myasthenia Gravis Survival Guide by Jeanne Rhynsburger, R.N. CCRN, MICN, ACLS. | http:/www.4-mga.org/pubs/survival.htm |
| Overview of causes, treatments, etc. from the Family Internet. | http://www.familyinternet.com/peds/top/000712.htm |
| Basic MG Information from Case Western Reserve University. | http://mediswww.meds.cwru.edu/dept/neurology/ myasthenia/mgbasic.html |
| Thymectomy Information | |
| MDR 95 Conference produced three interesting papers including one describing a new thymectomy procedure. | http://www.bio.unipd.it/~telethon/bam/abs62.html |
| Malignant Thymoma is thoroughly reviewed in this CancerNet information. | http://caduceus.medinfo.org/nci/cancernet/2/201248.html |
| Thymus Evaluation from Washington University - St. Louis | http://www.neuro.wustl.edu/neuromuscular/mtime/mgthy.html |
| Thymectomy for myasthenia gravis from MDX Health Digest. | http://pathfinder.com/@@zdxP3wYAPOywGFCU/thrive/health/ Library/CAD/abstract7397.html |
| Thymoma, A short description (including X-ray images) of thymoma and diagnosis from Harvard Medical School | http://www.med.harvard.edu/brad-bin/create_page.py/162/full |
| Thymoma - Information from MedicineNet on thymoma (description, diagnosis and treatment). | http://www.medicinenet.com/answr/thymoma.htm |
| Plasmapheresis Information | |
| Plasmapheresis can be useful in strengthening patients with MG before thymectomy and during the postoperative period. | http://text.nlm.nih.gov/nih/cdc/www/56txt.html#Head4 |
| Plasmapheresis: A Treatment Option for Patients with Myasthenia Gravis by A. J. Pinevich, M.D. is written for patients. | http://trfn.clpgh.org/orgs/mga/netnews1.html#Plamapheresis |
| Plasmapheresis and Intravenous Immune Globin from Macalester College. | http://www.macalester.edu/~psych/whathap/UBNRP/Gravis/ short-term_immuno.html |
| IVIG Information | |
| Study Shows IVIG Safe, Effective Treatment for Muscle Disease is the title of this 1993 Press Release | http://www.nih.gov/ninds/whatsnew/presswhn/1993/12-29-93.htm |
| IVIG Uses and Potential Risks are provided by the National Institutes of Health (NIH) Homepage. | http://text.nlm.nih.gov:80/nih/cdc/www/80txt.html |
| IVIG Use in MG has been provided by a doctor of pharmacy student. | http://pharmacy.isu.edu/idis/news/news0001.html |
| Intravenous Immunoglobulin (IVIG) For The Treatment of Myasthenia Gravis-Part II describes a new study | http://pages.prodigy.net/stanley.way/myasthenia/ivigstdy.htm |
| Drugs Used to Treat Symptoms | |
| Pyridostigmine Bromide Reference - A very comprehensive reference for Mestinon | http://www.gulfwar.org/UK/naps/psb02.html |
| Mestinon - drug characteristics from MDX Health Digest | http://pathfinder.com/@@7C*iFAYA2u6Cet6J/thrive/health/ Library/drug/drug369.html |
| Side effects from Mestinon need to be treated occassionally. | http:/www.4-mga.org/nov94/mestinon.htm |
| Nervous system drugs -pharmacologic characteristics of pyridostigmine (Mestinon), neostigmine, physostigmine - S.Africa | http://medix.mmi.uct.ac.za/~jmoodie/n07html.html |
| Ephedrine - drug characteristics from MDX Health Digest | http://pathfinder.com/@@7C*iFAYA2u6Cet6J/thrive/health/ Library/drug/drug170.html |
| Immune Suppressing Drugs | |
| Why Can't Prednisone Be Discontinued Suddenly? | http://www.transweb.org/faq/faq_pred_discont.html |
| Prednisone - a complete medical information sheet from RxList - The Internet Drug Index | http://www.rxlist.com/cgi/generic/pred.htm |
| Prednisone - description of usage, side effects, precautions, interactions with other drugs from MDX Health Digest. | http://pathfinder.com/@@QwdlewYAPeyCet6J/thrive/health/ Library/drug/drug354.html |
| Cyclosporine - drug characteristics from MDX Health Digest | http://pathfinder.com/@@7C*iFAYA2u6Cet6J/thrive/health/ Library/drug/drug143.html |
| MDR 95 Conference produced three interesting papers including one on the use of steroids, cyclosporine and azathioprine. | http://www.bio.unipd.it/~telethon/bam/abs62.html |
| Special Issues | |
| Double Vision and Drooping Eyelids" Double Vision and Drooping Eyelids - from the Western Pa. MGA. | http://trfn.clpgh.org/orgs/mga/news2.html#Double Vision and Drooping Eyelids |
| Ocular myasthenia issues from the Western Pa. MGA. | http://www.pitt.edu/~vklst1/ocular.html |
| Drugs which may aggravate MG; by Dr. Stanley Freedman are provided in this United Kingdom MGA homepage | http://www.crabby.demon.co.uk/mga/mgdrugs1.htm |
| Drugs to be taken with caution are provided by the Myasthenia Gravis Foundation of America. | http://www.med.unc.edu/mgfa/mgf-alrt.htm |
| Myasthenia Gravis in pregnancy from MDX Health Digest - Abstract. | http://pathfinder.com/@@LYmPjAYAOfKfJC2r/thrive/health/ Library/CAD/abstract5981.html |
| Menstruation and Pregnancy is discussed in this MGA of Western Pennsylvania phamplet. | http://www.pitt.edu/~vklst1/pregnancy.html |
| Study Investigates Fatigue in Myasthenia as reported in this MGA of Colorado article. | http://www.infohiway.com/~jk/mgacolorado/aug94/fatigue.htm |
| The Effect of Myasthenia Gravis on Human Sexuality | http://trfn.clpgh.org/orgs/mga/reprint.html |
| Childhood Neurology issues are focused on the University of Wisconsin homepage. | http://www.waisman.wisc.edu/child-neuro/ |
| Emergency management of myasthenia gravis - A Guide to Pre-Hospital Care from the MGFA. | http://www.med.unc.edu/mgfa/mgf-emer.htm |
| Medical Information | Some specific information on MG - some very technical. |
| Clinical Manifestations of myasthenia gravis are provided in this excellent summary of Epidemiology, Symptoms & Signs. | http://neuro.wustl.edu/neuromuscular/mtime/mghxpe.html |
| Part I of a 1994 paper by Dr. Daniel Drachman of the Johns Hopkins University - a complete review of myasthenia gravis. | http:/www.4-mga.org/nov94/progress.htm |
| Part II of a 1994 paper by Dr. Daniel Drachman of the Johns Hopkins University - a complete review of myasthenia gravis. | http:/www.4-mga.org/feb95/progress.htm |
| Part III of a 1994 paper by Dr. Daniel Drachman of the Johns Hopkins University - a complet review of myasthenia gravis | http://www.infohiway.com:80/way/mgacolorado/may95/progress.htm |
| Myasthenia in all forms is reviewed in this summary from Tampere University of Technology, Finland. | http://www.tut.fi/~korpinen/emgdiso.htm#3neur |
| Washington University - St. Louis provides detailed medical information on symptoms, diagnosis and treatment. | http://neuro.wustl.edu/neuromuscular/synmg.html |
| Actions and problems in the synapse are provided by researchers at Cornell University (Ed., very technical) | http://www.tc.cornell.edu:80/er/sci93/ dis26synapse/dis26synapse.html |
| Myasthenia Gravis, Familial incidence from On-Line Mandelian Inheritance in Man. | http://www3.ncbi.nlm.nih.gov:80/htbin-post/ Omim/dispmim?254200 |
| Myasthenia Gravis, Familial Infantile [Myasthenia, Congenital included] from On-Line Mandelian Inheritance in Man | http://www3.ncbi.nlm.nih.gov:80/htbin-post/ Omim/dispmim?254210 |
| MuscleNet aims at informing the scientific community - pertaining to muscle biology and neuromuscular diseases. | http://www.bio.unipd.it/~telethon/muscle.html |
| Evidence for an antigen driven selection process in human autoantibodies against acethylcholine receptor | http://web.pasteur.fr/Bio/pub/cardona1.html |
| NIH Press Release of 16 May 1996 which goes with the above 17 May 1996 article on nerve-muscle connections. | http://www.nih.gov/ninds/whatsnew/presswhn/ 1996/knockout.htm |
| Research and Researchers | Top researchers and some of their research abstracts. |
| Intravenous Immunoglobulin (IVIG) For The Treatment of Myasthenia Gravis-Part II - a Trial on 100 patients | http://pages.prodigy.net/stanley.way/myasthenia/ivigstdy.htm |
| IXth International Conference on Myasthenia Gravis and Related Disorders is in May 1997. | http://pages.prodigy.net/stanley.way/myasthenia/confer.htm |
| Audrey S. Penn, M.D. is newly appointed Deputy Director at NINDS of the National Institutes of Health. Wonderful. | http://www.nih.gov/ninds/whatsnew/noteswhn/ mar96/penn96.htm |
| Sara Fuchs, M.D. at the Weizmann Institute in Israel. She includes her research goals for myasthenia gravis. | http://www.weizmann.ac.il/brain/fuchs/fuchs.htm |
| Dr. Bianca M. Conti-Fine, University of Minnesota Medical School, includes a discussion of her myasthenia gravis research. | http://www.med.umn.edu/mdphd/research/contifine.html |
| Daniel B. Drachman, M.D., Dir. of the NM Unit at Johns Hopkins Medical School and a reknowned leader in MG research | http://www.med.jhu.edu/neurosci/ web_text_neurosci-PRIMARY-DRACHMAN.html |
| John Newsom-Davis Laboratory in England is a major MG research organization under it's namesakes leadership. | http://immwww.jr2.ox.ac.uk/groups/jnd.html |
| Neuro-Immunology Labs., with the University of BC, Vancouver Hospital & Health Sciences Centre. is studying MG. | http://www.interchg.ubc.ca/neuroimm/achrab.html |
| Neuromuscular Research locations are featured in this developing Italian homepage | http://www.bio.unipd.it/~telethon/links.html |
| Myasthenia gravis research from the Amer. Acad. of Neurology 1996 Annual Meeting, summary by Robert McMichael, M.D. | http://pages.prodigy.com/bobmcmichael/mg96.htm |
| Research through MGFA Fellowships and Grants - a record of recent years funded projects. | http://www.med.unc.edu/mgfa/mgf-resr.htm |
| Computer Retrieval of Information on Scientific Projects) is a detailed source of research grant information. | http://www.nih.gov/grants/ora/crisp.htm |
| Mandelian Inheritance in Man provided by the NIH provides detailed information on inherited disease. | http://www3.ncbi.nlm.nih.gov/omim/ |
| Genome Database provided by Johns Hopkins University deals with details of disease and genetics. | http://gdbwww.gdb.org/ |
| Individual Stories | Stories of successes and difficulties dealing with myasthenia gravis. |
| Famous myasthenics - a listing of well known myasthenics | http://pages.prodigy.net/stanley.way/myasthenia/famous.htm |
| "It Took 10 Years But Look At Me Now" is the success story of Jenny Legard losing weight while dealing with prednisone. | http://pages.prodigy.net/stanley.way/myasthenia/legard.htm |
| "The Second Time Around with Crisis" is a serious story of MG crisis as written by Charlotte Rogato. | http://pages.prodigy.net/stanley.way/myasthenia/rogato.htm |
| "Making it Easier to Live with Myasthenia Gravis" by Debbie Marshall. | http:/www.4-mga.org/feb95/living.htm |
| Setback sweetens student's dream is the story of Jamie Rand as written in this Portland Press Herald article | http://pages.prodigy.net/stanley.way/myasthenia/rand.htm |
| Wilma Mankiller - Story of this former Chief of the Cherokee Nation who has myasthenia gravis. | http://www.powersource.com/powersource/gallery/people/wilma.html |
| Marleen Burns describes a 10 year long struggle with MG | http:/www.4-mga.org/aug94/remision.htm |
| Ed, Laura, Marlene and William tell their stories through the MGA of Western Pennsylvania. | http://www.pitt.edu/~vklst1/experience.html |
| Tracy Lynn's Story is a story with a sad ending as told my her family. | http://ourworld.compuserve.com/homepages/roberttallen/ |
| Randy's homepage describes his battles with myasthenia gravis. | http://members.aol.com/Roknrandy/roknrandy.html |
| "The Proof of Steroids is in the Skiing" is the story of Robert Wright and his victory over slowly progressing MG. | http://www.crabby.demon.co.uk/mga/mganews/ski.htm |
| The Silent Trumpet- the story of a 15 year old former trumpet player with MG. | http://www.geocities.com/HotSprings/8250/silenttrumpet.html |
| Congenital Myasthenia Syndrome | Information specific to the congenital myasthenia syndrome |
| Childhood Myasthenia includes congenital, neonatal and juvenile diseases as described in this Colorado MGA article. | http:/www.4-mga.org/aug95/child.htm |
| Ephedrine and congenital myasthenia are the subject of this physician's note on the MGH NeuroWebForum. | http://dem0nmac.mgh.harvard.edu/neurowebforum/ ChildNeurologyArticles/ephridrinecongentlmyasthenia.htm |
| Non-English Myasthenia Gravis Information | |
| Spanish | |
| GUIA PRACTICA PARA LA MIASTENIA GRAVE - Por : John E. Keesey, M.D. y Rena Sonshine | http://pages.prodigy.net/stanley.way/myasthenia/pracspan.htm |
| DATOS ACERCA DE LA MIASTENIA GRAVIS | http://pages.prodigy.net/stanley.way/myasthenia/factspan.htm |
| Timectomia en el tractament de la Miastènia Gravis en infants | http://www.acmcb.es/societats/39/pedcatult/timectomia.html |
| Video Assisted Thoracic Surgery (VATS) from Brazil (in Spanish) | http://www.epm.br/cirurgia/vats/VATSIP.HTM |
| Miastenia Gravis - (Brazilian) Brief summary | http://www.ufrj.br/medicovirtual/informa/neurologia/miast.htm |
| Italian | |
| (Associazioni italiana e internazionale per la lotta contro la Miastenia), an organization in Italy for myasthenics. | http://www.vol.it/IT/IT/ASSOC/AIMIMG/ |
| U.I.L.D.M. LA MIASTENIA - (Italian site) Una guida per il medico generico | http://andi.casaccia.enea.it/andi/stampa/RIVISTE/DM/ ISSUE/opusco/opu/Miasten.htm |
| Italian summary - a general review of causes, symptoms, age groupings, genetics, treatments and prognosis | http://www.bio.unipd.it/~telethon/T95/mg.html |
| French | |
| UN GUIDE POUR LA MYASTHENIE par John C. Keesay, M. D., et Rena Sonshine | http://pages.prodigy.net/stanley.way/myasthenia/pracfren.htm |
| Belgian | |
| Myasthenia Gravis Association Belgium has a wealth of information on myasthenia gravis. | http://www.dma.be/p/bewoner/MGLiga/index.htm |
| Dutch | |
| Vereniging Spierziekten Nederland. This is an Association of and for people with neuromuscular diseases. | http://www.vsn.nl/ |
| Myasthenia Gravis (MG) is een neuromusculaire aandoening (Diagnosis in Dutch) provided by VSN. | http://www.vsn.nl/dia2214.htm |
| Finish | |
| Finnish on myasthenia gravis - Suomen MG | http://www.jyu.fi./~vamtutk/mg.html |
Last Update: 8/99
Name: Stanley Way
Email: stanley.way@prodigy.net